is long-lasting disease that boons serious medical and psychological problems.
Thalassemia effects on physical health that lead to physical distortion, growth
delay, and delayed sexual maturity. It also effected physical appearance such
as bone malformations and short physique, and poor self-image. Some severe
medical problems also occur due to thalassemia such as heart failure, cardiac
arrhythmia, liver disease, endocrine hitches, and infections these are very
common in thalassemia patients. The problems that were stated do not only
affect patients’ physical functioning but also effects patients demonstrative
functioning, common functioning and conservatory functioning, leading to decreased
health-related quality of life (HRQOL) of the patients. (Acta Haematol.2002).
Thalassemia is a significant health problem, placing an
unlimited emotional, psychological and economic load on millions of people all
over the World (Panos, 2005; Riewpaiboo et al. 2010). Recent data postulate
that about 7% of the World’s population was a transporter of a hemoglobin
disorder and that 3,00,000-5,00,000 children are born each year with the acute
homozygous condition of these diseases. 80% patients of thalassemia major were suffering from
psychiatric disorders such as anxiety and depression. Anxiety and Depression
are the most common disorders among thalassemia patients.
Once study states that thalassemia patient’s quality
life is lower as compared to older patient. Once study on thalassemia patients
conducted that around 10,000 new born are delivered each year with severe form
of thalassemia. Mednick and its colleges institute conduct a research and
defines that 32% patients suffer from anxiety and 11% patients from depression.
Untreated thalassemia major leads to heart failure and liver problems these
types of problems also effect on normal functioning of patient. Thalassemia
patients required blood transfusion after every 2 weeks. Patients with
Thalassemia intermedia need blood transfusion to improve their quality of life
but to survive. Lifelong blood transfusion leads to iron over load which can be
treated or prevent early death or create a failure to organ.
One such study often mentioned
overprotection and overdependency responses by parents. The thalassemia
patients are so weak so they are totally dependent on some other person such as
mother, father, siblings and other family member for their work. So, in that
case they want others and its management tend to prolong dependence of the
patient on family care and demonstrative support. Parental anxiety may lead to restraint
activities of the child or teenagers, incompatible with the tendency toward self-sufficiency
(Minerva Pediatr,2002). Most studies inclined
to highlight the psychosocial side of coping with thalassemia, but clearly the disorder
itself and its treatment have a major effect on Quality of Life. A recent study
on adults with thalassaemia suggests that treatment and cultural differences
did not have a major effect on the Quality of life in Cypriot thalassaemia
patients (Telfer P et Collegues,2005).
to Messina and its colleagues, in their study about the young adults of
thalassemia patients initiate that the self-image was characterized by poor
feeling and helplessness; the quality of life presented that the emotional role
and social function were significantly low in all the areas; that thalassemia
patients showed a personality categorized by somatization, depression and obsessive-compulsive
traits (Messina et collegues,2008).
were insufficient practical data that describe the psychological experience of
adult patients, up to 50 years. In accumulation, there were few studies that
have included in the evaluation, some projective method, credibly due to the
difficulty of applying psychological and compound analysis of personality in